You Win Some, You Lose Some, In The Chronic Illness Game

This is a feature article by Leslie from Getting Closer to Myself. The blog is about Leslie’s personal experiences, but its main purpose is to create greater awareness about autoimmune diseases. In April 2008, at the age of 22, she was diagnosed with rheumatoid arthritis and lupus. The road to get to that point was by no means an easy one. Since then, she has made it her goal to make the road easier for others who share the same journey.

If you read my previous posts as of late, you know that my transition off of Methotrexate and on to Humira has not been a smooth one.  I botched my last Humira injection, which was pretty traumatizing for me.

So as the two week mark approached, I have been filled with anxiety about my next injection.  Today was hard.  I decided that since I was alone last time, that my boyfriend be present this time, as he was the first time.

I had him hold the actual pen so that I wouldn’t, consciously or unconsciously, move it away while the injection was being given.

The injection definitely burned again, but wasn’t as bad as last time.  But we got it done.  And when I say “we”, I mean “we”.  It was definitely a team effort.  My confidence and nerves were totally shot. I felt like I couldn’t get a good grip on the skin to pinch it, and every time I went to push the button, I chickened out.  But I finally did it.

It’s amazing to go from a teary, freaked out mess, to feeling so great once it was finally over with.  I have to keep reminding myself that this is a new thing for me.  This is only the third injection.  This whole pen deal definitely has more of a learning curve than I was expecting.  But I guess it was that way with the Methotrexate, too.

Ask me in a few months, and hopefully this will be second nature to me then.

Anyway, on to other things…

The headache situation hasn’t changed.  I had a bad one last week.  My BF was amazing, though. And I was able to recover in a few hours, which was a surprise to me.  However, since I’ve been off the MTX, it confirmed for me that these headaches are definitely still a problem, and need to be dealt with.

And I finally got someone to take notice about my headache situation.  I explained to my rheum that I had been referred to the neurologist that has clinic at student health, and that he was totally unhelpful.  I explained how I used to get headaches, but not like the ones I am getting now.  I told my rheum that they get worse when I move my neck.

To read the complete article please click here, You Win Some, You Lose Some, In The Chronic Illness Game or if you want to learn more about Leslie’s journey visit her at Getting Closer to Myself.

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