Archive for the ‘Long Term Care’ Category

Open for Interpretation: POLST Forms Versus DNRs

When it comes to end-of-life decision making, most people are very specific about their personal preferences, according to a recent article at OregonLive.com. But a standard DNR (Do Not Resuscitate) order falls short, leaving caregivers with the burden of interpreting their loved one’s wishes. DNRs are currently the standard used by most hospitals and skilled nursing facilities, but a growing movement is slowly replacing the DNR: POLST forms.

POLST forms go beyond the DNR

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POLST (Physician Orders for Life-Sustaining Treatment) forms go above and beyond, outlining specific measures to be taken under different circumstances. A person can specify, for example, that he wants to be treated with antibiotics for an infection but does not want a feeding tube. POLST forms have actually been around since the 1990s (and were developed in Oregon), but communities across the country have been implementing the program in recent years.

POLST: Overcoming limitations of DNRs and advance directives

Standard DNRs and advance directives can be difficult to locate in an emergency. POLST forms, on the other hand, were originally designed to be brightly-colored and travel with a patient. If a resident in a skilled nursing facility or assisted living facility is transferred to the hospital, for instance, the POLST form accompanied the patient so there’s no ambiguity regarding the individual’s preferences.

Today, however, the state of Oregon relies on an electronic database established in 2009 so practitioners have immediate access to a patient’s POLST form. And patients are free to completely revoke or modify their POLST forms at any time. To date, more than 70,000 Oregon residents have filed a POLST form, a dozen states have implemented POLST orders and 22 additional states have plans to do so.

Code status tells little about individual preferences

Standard DNRs (or advance directives) tend to focus solely on a person’s code status: Do you want to be resuscitated in the event that your heart stops beating, for instance. The answer for many folks is no, but these orders fail to move beyond this to specify individual circumstances and various types of treatment  options that could provide comfort or prolong life.

The problem is that many physicians and emergency personnel have a tendency to over-interpret a no-code status, meaning if they’re treating an individual with a DNR, they also won’t consider other treatment options, such as antibiotics, feeding tubes, comfort care or hospitalization. Under these circumstances, some individuals failed to receive treatment they may have wanted, or ended up receiving life-sustaining measures they would have opted out of if given the choice.

Researchers from Oregon found that about 72 percent of people in the registry (a total of 25,000 individuals) didn’t want CPR, but were in favor of other measures, including hospitalization, temporary feeding tubes and antibiotics to treat infection. In prior studies, it was discovered that patients with a no-code status were less likely to receive antibiotics or to be hospitalized, and in some cases, physicians were less likely to order lab work.

According to Dr. Steven Zweig, professor at the University of Missouri-Columbia School of Medicine, says POLST forms help create meaningful conversations about end-of-life care, noting that standard DNRs over-emphasize CPR without drilling down to other important preferences.

More Seniors Leaving Nursing Homes to Age at Home

A federal nursing home mandate from October 2010 will be changing in 2012, according to The New York Times. For the past year, residents in nursing homes have been asked each quarter whether they’d like information on moving back into the community. Not surprisingly, families who fought hard to convince loved ones to move into a facility where their needs could be met adequately are less than thrilled with the repeated question.

More seniors opting out of nursing homes

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This question has always been asked of residents, and residents have always maintained the right to leave a facility. The difference in the past year is that if a resident (or family member or guardian in cases in which the resident isn’t mentally competent) answers, “Yes,” the facility must make contact with an outside agency that can provide information on returning to the community. In the past, the question was asked, but no action had to be taken regardless of the response.

Changes in April 2012

In April 2012, however, residents will be asked if they want to continue to be asked each quarter. If they say no, they’ll be asked annually instead of quarterly. These changes will be welcomed by families who worked long and hard to convince loved ones a nursing home was the best place for them, although the annual (or quarterly, depending on the person) problem will still persist.

New views on long-term care

The New York Times says these changes reflect a fundamental shift in how the government looks at long-term care, moving towards a person-centered model where care is provided — and paid for — in a place the individual chooses to age, such as their own home. Some states, author Paula Span says, are spending the majority of their Medicaid budgets on maintaining the elderly in their own homes, in senior apartments or in assisted living, a trend rapidly spreading across the entire U.S.

Nursing homes are the most expensive form of long-term care, so the move makes sense for states struggling to balance their budgets. However, there’s a flip side to this argument: Moving residents from a facility back into the community doesn’t always make sense. For instance, some nursing home residents are too frail or too advanced in a disease process, such as dementia, to be able to function independently, even with the help of personal care aides and home nursing services. Further, moving some residents back to the community means moving them into isolation, especially when the individual doesn’t have close family or friends.

The issue of whether to ask if a resident wishes to move back into the community, like many delicate health care debates, has no clear answer. As the U.S. attempts to re-balance its health care delivery systems and budgetary concerns, some seniors tend to fall through the cracks. There’s no one-size-fits-all solution, and attempts at making a standard rule that applies to — and works for — every individual are sure to fail.

What’s the solution? Let us know what you think in the comments below.

Miniature Horses in Nursing Homes? Trying new ways to help patients.

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Recently, many studies have proved the fact that animals can help in almost every stage of health care and recovery.   They are used to comfort patients in the hospital, and are used to help many with devastating disabilities go through physical therapy.  Furthermore, many are starting to believe that beyond simple happiness for elderly, animals can actually be beneficial for extending their life. This discovery has made many nursing homes start to allow animals.  Generally patients bring their cats, and sometimes their dogs, but horses are obviously not a pet they can easily bring into or care for in a nursing home. Allison, a former Certified Nursing Assisted from Minnesota, is working to change this, by collecting donations to be able to bring her miniature horses into nursing homes.

Half Pint Horses

When Allison worked as a Certified Nursing Assistant, she found that many of her residents were lonely, and seeking any form of companionship.   That is why her favorite aspect of the job was visiting the residents.

Where she lived in Minnesota,  many individuals had grown up with horses and had been forced to accept the fact that they would never see a horse again.

So, Allison started Half Pint Horses and began to collect donations to be able to take these horses into the nursing homes.  So far, it has been a success.   She has been able to visit a couple nursing homes and the horses were able to remind the residents of some happy childhood memories.   Even those who weren’t able to get out of bed were comforted and calmed when they were able to pet and see the miniature horses.

Though, miniature horses might not be coming to a nursing home in your local city, there are many organizations who are trying to bring animals to those who are sick or elderly.   There is no doubt that the companionship, and comfort that an individual can get from simply petting an animal can help them through difficult times.  If you are having a question about whether or not you should bring your pet to your new community check out this article.

Do you have a great story about animals in your nursing home or community, please let us know!

Seniors and Their Rights in Long-Term Care Facilities

At the skilled nursing facility where I work, we remind seniors that they all have rights. Their rights put them in charge of their experience in the facility and can direct their plan of treatment, as well as their personal way of living.

Well, we have a resident who prefers to wear only his underwear during the day. Yes, he’s totally alert, and there’s no trace of dementia. Of course, he has his rights, but sometimes resident’s rights can get a bit tricky to interpret. There are boundaries and then there are dignity issues.  Patients have the right to participate in their plan of care

I often run into situations where residents will request or even do something outrageous. Though, I’m a little too shy to share some of those stories with you today (blush, blush).

If your senior parents have specific requests that may be out of the norm and you’re worried about their rights, you should know that there are both state and federal regulations that protect them in long term care facilities.

Seniors who live in long-term care (LTC) facilities are definitely more vulnerable than seniors who live independently. In 1987, the U. S. Congress recognized this fact and passed The Nursing Home Reform Act that gave nursing home residents additional legal protections, including a set of Residents Rights.

In 1995, the Washington State Long-Term Care Ombudsman successfully persuaded the Washington legislature to extend Residents Rights to other LTC facilities such as assisted living facilities, adult family homes and state operated veterans’ homes. The point was to advance consumer healthcare education and to empower older adults and their family members to make informed long-term care decisions.

To review the full list of 12 Residents Rights, go to http://www.ltcop.org/index.htm. It includes all aspects of long-term care stay starting from the day of admission, lasting throughout their stay to the day of their discharge.

Let’s dig into 5 of them right now:

  1. You can communicate with whom you choose. This means that seniors can make decisions about all aspects of their daily living. So, the minute a senior wakes up in the morning, he can actually determine the time he wants to get up. Some residents believe that if they don’t get up early for breakfast, they would miss their first meal. Not so.
  2. Right to participate in and decide your plan of care. Everyone has the right to refuse care. As health care professionals, we will explain the risks and benefits to you, just to make sure you understand the consequences. For example, nurses may run into the dilemma of a senior declining his medications. This is a tough one and a common one. I personally work with seniors who refuse to eat, every single day.
  3. Right to information. All healthcare professionals will document everything about you, even if you are misbehaving. And, you have the right to read all about it.
  4. Right to privacy and respect. You must be respected and the residents around you must also be respected. The underwear story fits into this one. Again, healthcare professionals will educate you on the risks or benefits of your decisions.
  5. Right to hold resident and family meetings. You have the right to participate in resident gatherings in the facility; lots of meetings are usually going on. And, if you like, you can call a meeting as often as you wish.

Written by guest contributor April Fan, RD, CD

A Registered Dietitian and Senior Resource Diva, April Fan, RD, CD, Founder of SeniorResourceCentral.com, is on a mission to educate baffled adult children who are currently caring for their own children as well as their aging parents. Her goal is to help these juggling caregivers discover how to take the confusion out of this daunting role. Tap into April’s personal and clinical experiences, proven resources, handy tips and sane ideas at http://www.SeniorResourceCentral.com.

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No Crystal Ball? How to estimate your long-term care costs.

There are so many aspects to long term care: medical, social, environmental, psychological and spiritual.  But the one that I’d like to talk about is the financial aspect.  If you don’t qualify for Medicaid, you will be paying for the overwhelming portion of your long term care.  And with the economy in the shape it is, the government will be seeking to spend less and less.

Consider how you Plan for Other Large Purchase.

Purchasing long term care is one of the largest financial transactions you will make, ranking up there with purchasing a home and a college education.  Depending on your longevity and level of care, it can exceed both by a wide margin, easily being the most costly.

When we think we might be ready to buy a home, we go and look at dwellings, seek professional assistance, learn what is valuable to us, examine the costs and crunch the numbers.  The same can be said for choosing a college.  We start to look well in advance of high school graduation, visiting institutions and coming to an understanding of what is required, what is desirable and what is affordable.  Both of these examples have one thing in common that the majority of long term care purchases don’t: the amount of time we start investigating before the actual need arises.  It seems most long term care is purchased rather quickly.  An event occurs, many times a fall, and then it is decided that assistance is needed, immediately.

Some of us have thought well in advance and purchased long term care insurance.  If you are fortunate to be able to afford a long term care insurance plan, it can provide much assistance.  If you can’t afford insurance, your life savings, assets and pension income will have to suffice.  And since it is the last large purchase you will make, it would seem prudent to investigate long term care scenarios with the luxury of time on your side, not with urgency.

As when purchasing a home or deciding on a university, you can opt to hire a professional who can help you plan for long term care.  You may already have a financial planner or an accountant.  However, I would consider investigating an elder care attorney and/or a gerontologist.  These professions are specific to our discussion.


Figuring out Long Term Care on your Own?

 

If you wish to investigate the costs of long term care on your own, there are many ways to proceed.

  • On the internet, there are sites that profess to publish the costs of senior care.  Some of them are insurance company sites.  Most often, the figures they provide are estimates or averages.  In my experience, I have not found any site that can tell me what the actual cost of long term care is.  And they can’t, because they have no idea what you want or need.
  • In order for you to establish what the cost of long term care is, for you, you must gather information on long term care facilities or scenarios that interest you and compare them.
  • Whether you use a professional or not, I strongly advise you to visit several long term care facilities, speak to others about different senior care scenarios, gather as much information as you possibly can and start the process of completely understanding your own financial situation and possible future needs.  It sounds like a difficult task, but you will be amazed at how well you will do.  You just have to start.

Take your Time in Choosing a Facility.

Remember, no one can tell you what house or apartment to buy, or what college to attend.  In the end, these are your decisions.  Take the time to understand the differences between private-for-profit facilities, secular non-profit facilities and religious-based providers.  Visit as many facilities as you can.  Eat the food.  Chat with the staff and definitely talk with the residents.  Ask how many doctors are on staff at any given time.  How many registered nurses?  How is their physical and occupational therapy department?  See what social amenities are available.  Hang out.

If you think you like a place, go back a second time.  Eat again.  Talk some more.  There are many aspects to investigate.  Make sure you take a pad and pen.  And leave with every piece of paper they can give you, including a sample contract and a list of ancillary costs.  If they don’t offer them, ask.

Remember to Factor in all Costs.

In my experience, there are generally two main costs of long term care: an entry fee (if there is one) and a monthly fee.  These are usually based on the physical size and type of accommodation and vary with spouses or companions and levels of extended care, such as deals on eventual skilled nursing care.  In addition, there are ancillary fees that I mentioned above.  These are usually items like telephone, cable TV, incontinence supplies, medication packs, etc.  The list can be very long and can include items you think are covered by the monthly fee, such as meals or laundry.  Obviously, they can add up.

Once you’ve established what the costs are for several long term care facilities and you’ve charted your own income and worth, you can then project out into the future and see what is affordable for you.  No one has a crystal ball, so projecting is equal parts science and luck.  The prudent person will revisit the calculations whenever changes happen and make the appropriate adjustments, if needed.

This isn’t rocket science, folks.  But it does take work, work that is for your benefit.  And in the end, you’ll be glad you did it well in advance of when you need it.

Written by Guest Blogger Bill Fabrizio.

Bill Fabrizio is the author of The Senior Care Calculator,
www.seniorcarecosts.com It is a free website that assists people wishing
to make sense of the financial costs of particular long term care
facilities they are interested in and visit.  His website is an outgrowth
of experiences helping his mother choose a senior care facility.

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Long-Term Care Critiques, State-by-State

The report cards are out and for many states, remediation will be needed.

The report, “Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers,” shows that most states need to improve in areas of home care, assisted living, nursing home care and family caregiver support.  The report was released jointly by AARP’s Public Policy Institute, The Commonwealth Fund and The SCAN Foundation and examined 25 individual factors relating to four areas or interest in the long-term care industry: Long-term care evaluations by state

  1. Affordability and access
  2. Choice of setting and provider
  3. Quality of life and quality of care
  4. Support for family caregivers

The states were ranked as a whole, based upon their performances.  According to the report, the states ranking the highest have made strides in public policy surrounding the aging with direction being given to state Medicaid programs.  They also show to have more options available as an alternative to nursing home placement.

The South East as a region fared the worst in the study with most of the states ranking in the bottom quarter.  The top states were spread throughout the country, with Minnesota garnering the number one spot.

Minnesota offers quality long-term care

Minnesota ranked number one in several of the 25 categories, including number of assisted living facilities per 1000 people (80), the number of home health aides per 1000 people(108), the percentage of high-risk nursing home patients with pressures sore (6.6%) and the percentage of long-term nursing home patients requiring hospitalization (8.3%). The lowest ranking state, Mississippi, in comparison only had 14 assisted living facilities per 1000 people and 13 home health aides per 1000 people.  It also had nearly double the percent of nursing home patients with pressure sore (12%) and four times the number of long-term nursing home patients requiring hospitalization (32%).

Proof is in the numbers

So why is this report important? It provides possibilities.  It is possible for facilities and states to limit the number of rehospitalizations and center-acquired pressure ulcers.  It is possible to provide affordable housing and opportunities for long-term care.

The authors of the report suggest that if all of the low-performing states were to reach the levels that the highest states have maintained, the nation could see vast improvements in care for the elderly.  They estimated that 667,171 more individuals with disabilities would covered by Medicaid, 120,602 fewer avoidable hospitalizations and 201,531 fewer unnecessary nursing home admissions.

The intial costs of such programs may costly, but the decreased number of hospitalizations alone could save the country more than $1.6 billion.  More importantly, the care of our nation’s senior citizens would improve dramatically.  Where does your state rank? From what you know about long-term care do you think it’s a fair assessment?

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Fee-for-Placement Services: The Debate

The New York Times features an article covering fee-for-placement services, including some information from an interview with two members of the SeniorHomes.com founding team, Chris Rodde and Jay Goldstein. There are a few different types of senior care referral services:

  • Pay-per-lead: This is the model used by SeniorHomes.com, as we outline in our “How we make money” section. We list all providers in a geographic area, whether or not we have a business relationship with them, but featured providers are listed at the top of a geographic page with photographs. We refer families to any facility that may meet their needs, regardless of whether we have a business relationship with that particular facility.
  • Pay-per-move-in: This business model relies on whether or not an individual actually moves in to a facility, and the referral service gets paid only if a move-in occurs. The issue here is whether these referral services will recommend facilities with which they do not have a contractual relationship.
  • Pay-for-service: This describes the typical geriatric care manager relationship, in which the family or individual pays the professional for referrals to appropriate facilities, instead of facilities paying for leads.

In any case, the professional agency or individual making the referrals is getting paid, whether by a facility or by the family. Not surprisingly, this has sparked a discussion on the NYTimes site, and we’re interested in hearing your thoughts. Is the issue here merely a matter of transparency, whether the family is aware that the referral agency is being paid? Or does the issue lie solely with referral services who refer families only to facilities that they will earn money for, theoretically (in some cases) ignoring what could be a better fit for the resident?

Is the business model any different than, say, a job site, such as Monster.com, CareerBuilder.com or any number of other websites? In terms of job leads, it works in a similar fashion: In some cases, an employer pays to post an opening. In others, job seekers pay for a membership to the website in order to view open positions. In either case, the website is making money.

Please weigh in with your comments, either here or on the NYTimes article. We’d love to hear your thoughts!

Nursing Home Payment Cuts: What It Really Means

Payments to nursing homes will be cut by 11.1% by the Centers for Medicare and Medicaid Services.  The reduction, set to go into effect on October 1st, will result in a $79 billion loss to the industry over the next 10 years. The decision, not surprisingly, was met by resistance from operators and advocates who say the quality of care will suffer. Advocates urging Congress to preserve senior health care funding

Medicare payments aren’t the only problem. Medicaid, regulated on a state-to-state basis, is also suffering in many states, and a number of state lawmakers have already enacted or proposed cuts to Medicaid nursing home payments. Ohio and Florida have already enacted such measures, which will further reduce revenues and operating capital for skilled nursing facilities, which typically rely heavily on Medicaid funds.

The industry is fearful that a “Special Committee” formed by Congress, which is charged with further reducing the national debt by $1.5 trillion over the next decade, will make further cuts to Medicare spending.

The Alliance for Quality Nursing Home Care is one group advocating for preservation of health care spending and services that benefits seniors. The Alliance issued a statement on August 11th outlining the challenges faced by the skilled nursing sector, including:

  • $14.6 billion in prior cuts under the Affordable Care Act
  • Rising costs
  • Shortened length of stay
  • Higher patient acuity
  • Low operating margins
  • Medicaid cuts

A related article stresses the nursing home industry’s contribution to economic recovery, noting that the skilled nursing industry is the country’s second largest health facility employer, accounting for 1.7 million jobs and $201 billion in annual economic activity. (Based on research findings from Avalere Health.) Alan Rosenbloom, president of the Alliance for Quality Nursing Home Care, states, “In addition to being a vital pillar of the U.S. economy and pivotal to badly-needed jobs growth in a dangerously weak economy, facilities have invested heavily to increase capabilities to admit, treat and return to home a rapidly increasing number of patients requiring intensive post-acute rehabilitation and care for multiple chronic illnesses.”

MarketWatch points out that cuts could result in increased costs for residents. Toby Edelman, senior policy attorney with the Center for Medicare Advocacy, says operators will be under pressure to make up the loss somewhere, and it’s likely to fall on the shoulders of residents paying for care out-of-pocket. Even if private pay costs increase, residents may still see a decrease in the overall quality of care as staffing cuts and cost-cutting measures will indirectly impact resident care.

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Nursing Home Demonstration Project Focuses on Frequent Hospitalizations

It’s not uncommon for nursing home residents to have inpatient hospital stays, but the frequency of these visits is a growing concern for the Centers for Medicare and Medicaid Services (CMS). The problem isn’t that nursing home residents sometimes require acute inpatient services, but rather the fact that so many hospital stays are avoidable. Hospital visits are, of course, quite expensive, so this places unnecessary financial strain on the already fragile Medicare and Medicaid systems.  Nursing home resident hospital stays are costly

In 2005, CMS determined that 314,000 inpatient hospital stays for skilled nursing residents were potentially avoidable, creating $2.6 billion in unnecessary expenses. In response to this increasing problem, CMS has launched a demonstration project to create programs that can reduce the number of unnecessary hospital visits and save the system billions of dollars, according to Healthcare Finance News.

About 150 skilled nursing facilities with high hospitalization rates and a high percentage of Medicare/Medicaid dual eligibles will receive intervention services from third-party independent organizations selected by CMS. Currently, no independent partners have been announced and CMS will continue to accept proposals through July 29th.

Partner Competition is Stiff

Organizations wanting to participate in the project have their work cut out for them. A number of strict requirements have been set forth by CMS, including evidence-based results, coordination of care and communication strategies reaching patients, families and communities. Prevention is also heavily emphasized, such as reducing urinary tract infections, adverse drug interactions, falls, pressure ulcers and dehydration–all common complications in nursing home residents that often lead to inpatient hospital stays.

Programs may include the use of nurse practitioners and will also emphasize transitioning residents between nursing homes and acute care facilities. Organizations selected for the project will work under a 12-month contract, which can be extended for three additional 12-month periods pending the success of the programs.

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Virtual Rehabilitation a Reality in Skilled Nursing, Assisted Living Facilities

Two senior living facilities in the Las Vegas area have added a new rehabilitation channel to aid seniors in regaining physical and occupational functioning: Virtual rehabilitation is offered through a system called OmniVR, created by Accelerated Care Plus. The system is designed for individuals requiring complex therapy, including aging adults. OmniVR utilizes a 3D camera to track an individual’s precise movements, allowing them to interact in real time with a completely virtual environment. Assisted living facilities make use of virtual technology

Accelerated Care Plus developed OmniVR based on research that demonstrates that patients enjoy and are motivated by virtual exercises. The system encompasses physical, occupational and speech therapy with a complete set of skilled exercises therapists can tailor to patients’ individual needs by adjusting difficulty levels, balance, seating exercises and even cognitive activities.

OmniVR simulates a variety of real-world scenarios, enabling patients to improve their ability to conduct activities of daily living by working their way around a virtual kitchen or tending to personal hygiene in a virtual bathroom. Not limited to just the essentials, patients can tend to their own virtual gardens or play a virtual game of chase. Beyond the sophisticated (and fun!), patients can also participate in simple exercises. All tasks can be done from a seated position, standing at a walker or standing unassisted as ability progresses.

More than 4,000 assisted living communities, nursing homes and rehabilitation centers are already using OmniVR across the United States. The system is best compared to the popular Nintendo Wii, which has been touted for its usefulness in senior living environments as a way to get residents excited about activity and up and moving in a fun and productive way.

Patients with dementia and those recovering from strokes, surgeries or falls–even those with degenerative conditions–can benefit from virtual rehabilitation. Like the Nintendo Wii, which has hundreds of available games and experiences, OmniVR has dozens of puzzles built in designed to aid and challenge cognition. OmniVR is just one example of the changing face of senior living, which is evolving from its perception of a static, sedentary lifestyle to one infused with modern technology and active adult living.

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